Wednesday, May 30, 2012

Catch up

Quick catch up: Ansley- She's had a rough weekend consisting of multiple seizures. We have now doubled her medicine from where she was when leaving the hospital. So we went to the doctor today and the doctor added another medicine. He did give us comfort by telling us the ultimate goal is to stop the seizures all together it's just finding the right medicine or medicines to stop them! Other than the seizures Ansley is developmental great and doing well. Aiden- He is starting to play tee ball so we are all very excited to watch him play this week. He is still acting out but ultimately just misses normality. It's just been a big change not having his daddy Jim and Brandon and I being gone so much! He talks about my dad 20 times a day. He's started dressing in his clothes and pretending to be him. It's so sweet yet so sad to see how much he loved my daddy! I hope I can always help him remembe hw much dad loved him too! Finally me- I'm hanging in! I have my days. Brandon said i talk about my dad alot! But I just miss him soo bad! It's very hard for me to go to Vanderbilt for Ansleys doctor visits or hospital stay. I can't help but think of my dad and that's where I visited him for the last 6 weeks of his life and where he took his last breath. I still haven't walked back into the main hospital, I've stayed on the Children's side. I think of him a lot during my morning runs and find myself either overjoyed or in tears. He was who I went to about anything medical so during everything with Ansley it's been hard not having him. I have to constantly remind myself how happy he is now and how unhappy he was before he passed. I find comfort that he's not hurting anymore! But as far as handling Ansley I've done ALOT better. I don't panic or anything just sit there until she breaths and then hold her. It still breaks my heart every time she has one, I just tolerate them better. So overall we are holding strong to Jesus Christ and seeing that he will get us through!

Monday, May 21, 2012

Going good

Well we are now 4 days without having a seizure!! Ansley seems to be doing great! Aiden on the other hand is having a hard time with everything. He has started acting out, I'm sure he wants attention too. I'm hoping soon we can feel ok enough to leave Ansley so we can spend time with just him. On another note I signed up to run the St Jude Memphis half marathon again this year. However this year I decided to be a St. Jude Hero and raise $500 for St Jude. I am running in memory of my dad. No he did not die of cancer but he was an amputee and I know it would make him very happy and proud of my brothers and I to run, something dad would never be able to do. If you would like to help me reach my goal I would greatly appreciate it and so will the children of St Jude. Http://Heroes.stjude.org/reneecox

Saturday, May 19, 2012

Regulation

So Ansley has had a good past few days so far. Thursday she had her 6 months check up and on her way to the appt she had a seizure in her car seat. This is the first one she's ever had in the car. Luckily I was sitting beside her in the back and was able to quickly get her out of her car seat. I didnt panic or cry i just got her out of the seat and laid her in my lap, she did start breathing again very quickly on her own. We went on to the doctor and immediately went back so herat and oxygen stats could be monitored during the posticital state. Her pediatrician was not comfortable with giving her shots or doing her check up until we get the seizures regulated. So her neurologist said to up her dosage of her meds. Her ped also thought it was a good idea for her to have an apnea monitor so we have one now. Unfortunately I agree with the doctors- I tend to be more nervous looking at the monitor all night. Since increasing her meds she has not had any more so hopefully we are working on on getting this regulated and soon we will. I had no idea how much this would change our life's even temporary. Brandon and I don't leave her at all and definitely will not go anywhere unless someone can ride in the back with her. We are staying with my mom since my husband is working. Overall my sweet baby is a happy girl and I'm so thankful for her!!

Wednesday, May 16, 2012

Difficult 2 weeks

So after the visitation, funeral, and memorial for dad passed we tried to regroup and start life again. 2 days later mom and Aiden got strep. 2 days later Ansley had another episode and we were again sent to Vanderbilt. We have been there 5 days and came home yesterday. While there Ansley was diagnosed with epilepsy. It's been a very scary past few weeks and especially few days as we watched her have the worst seizures on Sunday, Mothers Day. I promise having rapid response called on your 6 month old can ruin any moms Mothers Day. Anyway back to the positive we are home now and will begin to learn to live life. We don't know what Ansley's future holds, seizure free or not docs are unsure. The past few days the seizures have been controlled with meds so I am praying she will continue to be seizure free! I will soo.n be starting a blog/journal devoted just to this stepping stone in our life. Thanks for your prayers and I will let you know the link to that blog soon!

Sunday, May 6, 2012

Rough Year

If You know me well you probably already know this week has been the worst week of my life. On last Saturday my sweet baby girl was air lifted to Vanderbilt hospital where e stayed until wednesday. She was diagnosed with seizures awares are treating her with meds. She is doing fine now just scared us all. However Wednesday I lost the first man I ever loved. My daddy passed away Wednesday night. I find comfort in the FTC that my dad is not hurting anymore and is walking on both legs in heaven. I miss him tremendously already. I know we have a long way to go Nd we could use lots of prayers.