Sunday, July 22, 2012

Life at home

First I would like to let you know wew are 1 week and 1 day seizure free. This is not abnormal so I can't get too excited. She will usually go a week without having one but I am praying the increase in frequency and amount on her meds is really helping. Being at home has been a little different. Ansley now sleeps with a pulse ox and an apnea monitor. Plus we take an oxygen tank with us whereever we go. Yea I looked silly going for a walk this morning pushing a stroller and oxygen tank. But you do what you gotta do. Ansley loved seeing Aiden when we got home and of course we did as well. I know it's nothing but babble but Ansley makes the best "a de" sound ever, which just lights up Aidens world. We were a little nervous of how Aiden would be around her since he is usually unintentionally rough, but he has done well. It breaks his heart to see her uncomfortable. She hasn't seem to hurt too much since being home, just uncomfortable. She has tried to roll over which she let us know did not feel good. She likes to sleep on her side or lay on my shoulder to sleep and she can't do that just yet, so getting to sleep is a task. Understandably she just wants to be held and cuddled (gently), which we have no problem doing. Overall Ansley is doing great!!! One thing I have been meaning to do is let you know just how blessed and thankful we are to have wonderful families. Brandon has 2 sisters and I have 2 brothers, as well as our parents. Since the very first day Ansley went into the hospital they, along with my sister and brother in laws, have been there with us non stop. They have packed our bags at the last minute, washed our clothes, brought us food and snacks, taken care of Aiden, and driven miles and miles to be with us. We already know they are the best family but I have failed to tell them that enough! Thank you all so much!!

3 comments:

Sarah Scott said...

So happy you are home! I know Aiden is thrilled to have you all there and he will take extra special care of his sissy! Praying things continue to go well. Love to all, big hugs, and God bless!

Tiffany said...

So glad you are home! Continuing to think and pray for y'all through all of this. I hope life gets to a "normal" for y'all very soon.

Jennifer Baker said...

Renee, you are such a strong, amazing mommy. Your little family has been through so much in the last several months, I know you are happy to be home and all together again. You're all in my prayers and I hope Ansley continues to get better and stronger.