Tuesday, July 10, 2012

Lebonheur

Ansley, at 8 months, has now stayed in more hospitals than most people do in a life time. We were admitted into LeBonheur Childrens Hospital this morning and this time by choice. I mentioned awhile back we wanted a second opinion. Unfortunately most doctors want their own reports and test so after a lot of prayer we decided it was best to go through with that now instead of months down the road. Ansley's seizures have just been a vicious cycle- she does well for a week then has multiple seizures, the doctor will up her medicine and then the process starts all over. Maybe I've not given the meds enough time to work but we need to know we are doing the right thing for Ansley and it really is - medicine regulation issue. Many people have told us about an outstanding doctor here at lebonheur, I have spoken to his nurse many times before this weekend, finally Monday I called her in desperation to help me and she said come on in and they will do their complete work up to get us some answers. She is on the Neuro floor in a seizure room with cameras to have her on video to see her seizures happen. Today Ansley had an MRI again, many labs drawn, and hooked up on the EEG machine(test of brain activity). The doctor came in today and spoke to us for 30+ minutes, he came right in and sat to talk. I immediately knew we made the right decision. He came back tonight to check on us and give some info. Ansleys MRI looks great and so does her EEG thus far. Which means many things- her seizures are not causing shown residual effects to her brain. Her brain is still functioning great and actually doing things past her age level. He expected to see some signs of seizure activity even when she wasn't seizing but nothing. He then said its hard to believe these are seizures since he hasnt seen one. Therefore he has to see one on the monitor. We have seen them and there is NOO denying these look like seizures. So tomorrow the will stop her medicines to help induce a seizure. So right now we are praying for small quick seizures for the doctor to see. Thank you for your prayers and please continue to remember my sweet girl!!!

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